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"Our Way" Enhancing Ataxia Care in Non-Dominant Cultures: Reflections on the MJD Foundation models - Elizabeth Massey OAM

Wednesday, May 7, 2025
11:00 AM - 11:15 AM
DoubleTree by Hilton

Speaker

Ms Elizabeth Massey OAM
Director
MJD Foundation

"Our Way" Enhancing Ataxia Care in Non-Dominant Cultures: Reflections on the MJD Foundation models

Abstract

Biography

Libby is a co-founder of the Australian MJD Foundation (MJDF) and Director of Research, Clinical Services and Education. She is an Occupational Therapist experienced in working with neurological conditions. She holds a Master of Public Health and a Law degree and has expertise in health systems integration, Aboriginal health and disability sector issues, project management, research and evaluation methodology. Libby has more than 30 years of professional and personal association with families experiencing MJD and SCA7 in remote communities across the NT and FNQ and is responsible for ensuring that the MJDF research program reflects the expressed desires of families living with MJD and SCA7. Libby is currently completing a PhD investigating the understanding and potential uptake of assisted reproductive technology for MJDF clients.
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